Emily Henderson

Growing up Mormon, you wear a CTR ring – a constant reminder to “Choose The Right”. As an adult non-Mormon, […]

Four years ago, I was struggling pretty hard, mentally. In short, I was telling myself a really terrible story about […]

"The room blurred, and when I raised my head... gravity took the tears from my eyes and pulled them down my cheeks."

Objectives The importance of advance care planning in parkinsonism is increasingly recognised. Existing evidence shows plans are infrequent in this population. Little is known about the details of the plans themselves and whether patient factors predict advance care planning practices. This study aimed to describe advance care planning in people with parkinsonism enrolled in the PRoactive Integrated Management and Empowerment (PRIME-UK) trial, and identify factors associated with advance care planning. Methods This is a cross-sectional substudy of 211 participants within the PRIME-UK randomised controlled trial, a single-centre trial that randomised 214 people with parkinsonism to receive either a novel model of care (PRIME-Parkinson care) or usual care (ISRCTN trial ID 16783200). The presence of a treatment escalation plan was used as a measure of advance care planning. Results At the time of this study, a quarter (n=53, 25%) of participants had a treatment escalation plan. 45% of plans were created during an emergency hospital admission. 100 participants had appointed a lasting power of attorney (LPA). In adjusted regression models, increasing parkinsonism severity (OR 2.2, 95% CI 1.55 to 3.12), increasing frailty (OR 3.69, 95% CI 1.42 to 9.63) and increasing comorbidity (OR 2.51, 95% CI 1.53 to 4.14) were associated with having a treatment escalation plan. Conclusions Treatment escalation plans for people with parkinsonism are frequently completed in advanced disease during emergency hospital admission. Many individuals are appointing LPAs, suggesting an interest in future planning that could be further supported by clinicians. Future research should explore interventions to improve proactive outpatient advance care planning. Trial registration number 16783200 Data are available upon reasonable request. Requests for data sharing should be made to the chief investigator.

Lindsey Clay, founder of Connected Brighton, shares how her personal journey through divorce and infertility inspired her to create a dual-purpose organization that bridges social connection with business networking. Now celebrating its fifth year, the club supports the local hospitality scene while providing business coaching based on Lindsey’s three-pillar framework: clarity, confidence, and content.

The garden has exploded this year (turns out heavy rain + lots of sun + good design + good maintenance are the key, lol). Get excited for this backyard tou

I recently hit my T-shirt frustration point – just not having any that I felt comfortable in (outside of a couple of vintage gems). Now I like boxier, loos

Transform brand campaigns from an operating expense into a strategic capital investment by proving long-term business wealth and future cash flows.

Our upstairs meeting room is usable!! I won’t say it’s done, but we can absolutely start meeting up there as soon as we get our AC Quilt unit in 2 weeks (i

Watch the 3 minute video below about coaching, mentoring and professional collaboration. Emily Henderson is the Deputy Headteacher at Brookburn Primary School.